Enter 'Cancer' into your search engine and over 1 BILLION pages of information will come up. What is credible? What is not?
I have shared resources below that I have vetted and in several cases have personal experience to ensure credible information for followers.
The Leukemia & Lymphoma Society (LLS) is committed to providing information, resources and support to those affected by blood cancers.
My dad had multiple myeloma, was a volunteer at LLS, marched with LLS, and had a very special relationship with the then manager of patient services, Sue Sumptner. I had the pleasure of being a volunteer at LLS and interviewed Sue several times on Cancer Peace Radio. We also did interviews with high level researchers and doctors through LLS.
Special people, with special hearts.
Applying for health insurance or filing health insurance claims can be a full-time job and extremely overwhelming to patients, their caregivers and families. There are many excellent guides and tools available to help in working through these challenges and determining which resources are available to them. The Leukemia & Lymphoma Society (LLS) offers the following financial assistance programs to help individuals with blood cancer.
Patient Financial Assistance Programs
Susan Lang Pay-It-Forward Patient Travel Assistance Program
LLS's Susan Lang Pay-It-Forward Patient Travel Assistance Program is available to blood cancer patients, with significant financial need, who may qualify to receive financial assistance for approved expenses which include: ground transportation, air travel, and lodging related expenses.
Urgent Need Program
LLS's Urgent Need Program provides eligible patients assistance for non-medical expenses including rent, mortgage, lodging, utilities, childcare, elder care, food, transportation, car repair, car insurance, phone service, and acute dental work related to treatment. Eligible patients will receive a grant of $500, once within a 12 month period. At the end of the 12 month period, patients can reapply.
Other Financial Aid
For information about other financial aid, click here.
One-On-One Nutrition Consultations The Leukemia & Lymphoma Society (LLS) provides PearlPoint Nutrition Services® to patients and caregivers of all cancer types, offering free nutrition education and consultations. Our registered dietitian has expertise in oncology nutrition and provides free one-on-one consultations by phone or email. Schedule a Consult ...
Being diagnosed with a blood cancer can make you feel like you are alone. The Bloodline with LLS is here to remind you that after a diagnosis comes hope. Listen in as experts and patients guide listeners in understanding diagnosis, treatment, and resources available to blood cancer patients. Join Alicia Patten and Lizette Rivera from the Patient Access Education Team at The Leukemia & Lymphoma Society as the...
Reach Out to Others for Support The Leukemia & Lymphoma Society's (LLS's) support groups are the perfect place to talk with other people affected by blood cancers, including patients, family members and caregivers. The groups provide mutual support and offer the opportunity to discuss anxieties and concerns with others who share the same experiences. This sharing strengthens the family bond and enhances everyone's quality of life.
Am I A Caregiver? If you’re providing regular assistance, you are a caregiver. Your loved one may only need support occasionally, or your loved one may need constant care. The kind of support needed will be different for each person and may also change over time. But if you're consistently providing care, you are a caregiver. Here are just a few examples of caregiver tasks: Going grocery ...
We believe that when you're dealing with a cancer diagnosis, it's beneficial to read a variety of perspectives about how others have dealt with cancer or what advice they would share. We've come up with a list of select books that we recommend for patients, caregivers, children and teens.
5 Stars - Another great organization that I have had a decade of experience with.
Patient Advocate Foundation helps patients know that they are not alone when dealing with healthcare needs. There are national and regional resources dedicated to improve access to quality care and decrease the financial burden of medical treatment, and we can help you locate them quickly and easily.
To generate a list of the potential organizations that may have programs to address your needs, select the searching criteria that is the best match as it relates you. There is no limit to the number of different searches you can perform.
Patient Advocate Foundation's Co-Pay Relief program exists to help reduce the financial distress patients, and their families face when paying for treatment. We believe that no patient should go without life changing medications because they cannot afford them. They are here From personal experience, Patient Advocate Foundation is a wonderful organization that rolls up its sleeves and get things done for cancer survivors
# 4 Navigating Care
This is a great platform for information and managing your cancer plan. I highly recommended this program.
Join a community of survivors and share or learn from the experiences of others like you.
Easily build your personal support network to keep them up to date so they can keep your spirits up.
Keep track of your well-being, how you are feeling and your upcoming appointments.
Let one of their Patient Navigators point you in the right direction.
Directly print care summaries or use our mobile application to communicate in real time about your care.
Complete and collect your health history, medication lists and compile all your records in one place.
Other examples of resources available on this great platform.
Understanding Your Cancer
If you’re just beginning your journey, we’re here to point you in the right direction. Equip yourself with information about cancer.
Cancer treatments and medications are constantly changing. We’re staying on top of the latest information for you.
# 5 The Lymphoma Research Foundation (LRF)
The Lymphoma Research Foundation (LRF) offers a wide range of support services, educational programs and free publications for people with lymphoma and their loved ones. Whether you are newly diagnosed, want detailed information about lymphoma, are looking for ongoing support, or seeking help with long-term survivorship, LRF is here to help.
Trained LRF Helpline staff members are available to answer your questions about a lymphoma diagnosis and treatment information, as well as provide individual support and referrals to you and your loved ones. Callers may request the services of a language interpreter. To contact the LRF Helpline, email email@example.com or call 800-500-9976, Monday through Friday, from 9:30am – 7:30pm Eastern Standard Time (EST).
The Lymphoma Research Foundation (LRF) offers a Patient Aid Program for people currently undergoing treatment for lymphoma. Through this program, LRF may be able to assist lymphoma patients with expenses related to their treatment.
# 6 ClinicalConnection.com connects over 725,000 members with clinical research trials. Join now (its free) to be notified when new clinical trials are available.
Joining is 100% free and you will be notified when new clinical trials become available. Your information will never be shared or sold.
Find clinical trials near you.
Read their comprehensive guide about clinical trials or watch a short video.
Browse their library of health and medicine articles.
See answers about clinical trials.
View profiles of active research centers by state.
Create a FREE ClinicalConnection.com member account and be notified when clinical trials that match your health interests become available in your area. There is never any cost for notification services.
How it works:
After entering your contact information you'll complete a short questionnaire, selecting conditions that match your clinical trial interests. As soon as a clinical trial posts in your area for any conditions you selected, we'll send you an email with a link to view the listing.
- Finding quality cancer care despite age and other health problems
- Getting help paying for medications not covered by insurance
- Standing up for your rights in a health care system that sometimes discriminates against older patients
- Your doctor needs to be a full partner in your care
- Your needs, both medical & personal, are very important
- If something doesn’t seem right about your health discuss it with your doctor
- If you have questions about the way your body is responding to treatment discuss it with your doctor
- If you do not get the answers you require, push harder until you get the answers you need.
- If you do not get the answers you need, get a different doctor
Tips for communicating with your doctor
- Write down your questions or concerns is an excellent way to communicate and get answers to your questions.
- Have a copy of your questions & concerns so you can leave with your doctor
- Bring a family member or a close friend with you to appointments
- Ask your doctor for permission to record your appointment for future reference. This is very important as it is difficult to remember everything being said. If the doctor will not give you permission, find a new doctor
- Research shows that an informed patient usually does better in treatment
- Your family and caregivers need to know what to expect, what side effects, if any, to look for and when to call the doctor or nurse with a question or problem
- Many people are hesitant to question their healthcare team. This can lead to poor care, misinformation & increased problems
- You may find that you can communicate with your health care team, but don’t know how to talk to your friends & family
- Think of the three most important things about your illness that you want your family to know. Write them down
- Set ground rules for family’s involvement
- If you have a hearing or vision problem or some communication challenge, tell your doctor and nurse about it
- Your health care team also needs to know if there might be anything else that could get in the way of good communication
- If you cannot read, or have a hard time reading let your health team know
In summing up the information about communication, you are in control of your life and you and your caregivers need to become a good communicators with your healthcare team and family. It is your responsibility. It is part of the cancer dance as a good doctor friend says
- How to find information you need to deal with cancer? There is a tremendous amount of information on the internet, bookstores, and cancer resource centers at area hospitals and clinics.
Information about treatment changes rapidly
Your information should not be more than 1 year old
Look for well known sources and reliable resources like the National Cancer Institute or links provided on this website
Ask your doctor, nurse or social worker to recommend resources & books that are up to date.
Some people feel that they won’t be able to use the Internet because they lack computer skills. If you do not have computer skills, or don’t have a computer. Ask a family member or friend to help out.
If you know how to surf the net, but don’t have a computer or smart phone go to any library, senior center, patient resource center, or the home of a family member or friend.
As you search the web be cautious of the source of the information.
While many cancers can’t be cured, they often can be controlled for long periods of time, even years and decades. senior cancer resources